Comments for a rearranged life

Comment on Adieu, for now by Anonymous

Anonymous — Fri, 05 Jan 2024 21:35:18 +0000

I am writing here with pain in my heart.
I don’t know what or how much to write because I’m a total stranger to you , but I want you to know that we feel the same way and we are heartbroken .

Condolences for your blue eyed boy.
I cried a lot today when I came across your page and read some of the articles posted.
In the past, looking for information about kernicterus, I read about your case and I had hope that it is possible, it is possible to have some normality with a special child in the family.
I’m sorry for your loss … I am a mother living the same story, only in another part of the world.
I can say that for us the rewritten reality begins now, because our boy Tudor is 2 years old and now the real trials begin for us.

Lots of love and prayers from London .

Comment on Be Still My Soul: Torn & Stitched by Anonymous

Anonymous — Thu, 19 Oct 2023 11:33:26 +0000

You capture well the tension we are all called to hold –the joy and heartache of our existence here. Confounding paradox. Forgive me in the comfort of knowing I am not alone. Preach sister.

Comment on Be Still My Soul: Torn & Stitched by Anonymous

Anonymous — Thu, 19 Oct 2023 10:40:54 +0000

Your words capture the very essence of our human experience. Living and trying to hold the tension of joy and sorrow. Confounding complexity. Thank you for sharing…your words preach sister!

Comment on Be Still My Soul: Torn & Stitched by Miriam

Miriam — Tue, 17 Oct 2023 21:50:19 +0000

In reply to Anonymous. Thanks so much!!! So grateful for your influence in my teen years with the Saints! I see it as such a time of nourishment and I'm so grateful for it. Prepared me in some ways for the trials to come.

Comment on Be Still My Soul: Torn & Stitched by Anonymous

Anonymous — Mon, 16 Oct 2023 21:18:50 +0000

In reply to Anonymous. You have always had a gift in your writing. It connects. It touches every reader, no matter if our experiences are the same or not. I admire you so much. May God bless your family!

Comment on Be Still My Soul: Torn & Stitched by Anonymous

Anonymous — Mon, 16 Oct 2023 18:35:34 +0000

Love you! I think the same thing during worship!!!

Comment on Be Still My Soul: Torn & Stitched by Anonymous

Anonymous — Mon, 16 Oct 2023 03:17:03 +0000

oh Miriam, I didn’t know all the backgrounds of the hymns. Be Still My Soul is own of my favorites. Thank you for this.

Comment on Be Still My Soul: Torn & Stitched by Anonymous

Anonymous — Mon, 16 Oct 2023 02:31:05 +0000

Thank you for beautiful words and a beautiful heart. John Dorough

Comment on Of Birds and Bagpipes and Words that Matter by Donella Reay

Donella Reay — Sun, 30 Jul 2023 00:50:12 +0000

Such a wonderful tribute to your darling boy Blue. The song that his sister’s sang with their friends, brought tears.. So beautiful!

Comment on Adieu, for now by Nikki Simpson

Nikki Simpson — Sat, 22 Jul 2023 14:18:04 +0000

Beautiful words, Miriam. I’m heartbroken for you and your family. Thank you for sharing your story and faith with us through the years. Grieving with hope with you and remembering such an incredible young man of faith. I’m so sorry for your loss and pain. May God be so near and continue use his legacy for His glory

Comment on Adieu, for now by Donella Reay

Donella Reay — Sat, 22 Jul 2023 04:27:08 +0000

Oh sweet mama, your precious boy Blue has been and is SO incredibly loved by the Reay family in Arizona! We have been blessed to follow your family’s intensely arduous journey of crazy insane love for each other through this wonderful, ridiculous, blessed beyond measure, hideous life of Kernicterus. We adopted the ‘Honey Badger’ mascot name for our Gracie from a post you had written years ago about how much our children endure and yet still fight on through it all. I know the day will come when we too must say goodbye to our sweet girl and our hearts will tear to pieces as mine is now just hearing that Blue has left us. Gracie adored and admired your sweet boy so much! I don’t think I will share with her yet about blue going home to be with Jesus. It would be too much for her to bear at this time. Our souls are longing for that wondrous day when our darling children will be whole again.. when we will hear their precious voices for the first time, calling to us while we rush into a mutual embrace! Our hearts and prayers are with you all (((Hugs))) and (((Love))) to you Miriam and John and your sweet girls ❤

Comment on Adieu, for now by Jason Parr

Jason Parr — Sat, 22 Jul 2023 03:31:00 +0000

Beautifully spoken.

Comment on Adieu, for now by Steve Saint

Steve Saint — Sat, 22 Jul 2023 02:34:41 +0000

Steve and Ginny just read your briefing on Blue. You made Heaven more real and you brought tears to our hearts. We knew you as a young woman and a special friend to Stephenie. Just imagine Steph welcoming Blue…..that reunion will soon be ours! Can’t wait!!

Comment on Rolling In by Drakons

Drakons — Wed, 24 May 2023 03:15:46 +0000

Gratefuul for sharing this

Comment on Being Rearranged by Beth

Beth — Fri, 31 Mar 2023 07:35:08 +0000

Oh gosh this is so heartbreaking my nephew suffered the same only i dint know its name until today but yeah God is sovereign thank tou for sharing and may his live continue to carry you through

Comment on Hope in Disability: from John Piper by Recipe Tom

Recipe Tom — Tue, 18 Oct 2022 20:40:18 +0000

Thanks for shharing this

Comment on Broken to be Filled by Anderson Chapman

Anderson Chapman — Mon, 11 Jul 2022 13:47:09 +0000

Appreciate this blog postt

Comment on To SWIM: Way Beyond Water Wings by Cynthia Villasenor

Cynthia Villasenor — Mon, 20 Jun 2022 03:33:00 +0000

I too have a sibling that was injured at birth by the doctor that was drunk!!
I’ve been looking for a life jacket for her. She loves the pool so we got her one. She is now 65 years old and wasn’t expected to live past 12. We typically was thinking that a jacket w/a neck float wud work but not sure. She is completely incapacitated w cerebral palsy. We r also having trouble coming up w something to get her in the pool. So if u have any suggestions that wud surly b appreciated. Good luck to u and yr family. It takes a real dedicated family to take care of the handicap person, but I wudnt have it any other way an I no the good LORD will reward u for it.
Sincerely,
Cynthia

Comment on In the Wilderness by pamforeman

pamforeman — Mon, 14 Mar 2022 23:57:23 +0000

Dear Miriam, Continuing always to pray for your precious family. We love you each dearly and carry you to God in prayer. Love, Pam and Joe Foreman

Comment on In the Wilderness by Jennifer Hayes

Jennifer Hayes — Sun, 13 Mar 2022 20:11:21 +0000

Oh my dear, I think you are the most courageous person I’ve known. I’m not going to try to say anything prophetic. There are piles of crowns awaiting you and John to present to Jesus, and I can’t wait to see Blue run to your granddaddy, and give Billy a good game. We are all very proud of you guys, you are an inspiration. Stand strong
Love Jennifer