Comments on: Being Rearranged

By: Finding Home Outside of the Puddles | a Rearranged Life

Finding Home Outside of the Puddles | a Rearranged Life — Tue, 08 Jul 2014 17:55:54 +0000

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Mon, 14 Apr 2014 15:28:22 +0000

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By: For Nicole | a Rearranged Life

For Nicole | a Rearranged Life — Mon, 16 Dec 2013 20:09:28 +0000

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By: Sticks and Stones and Empathy {A Snapshot of Rearranged}. - All The Grace Between

Mon, 18 Nov 2013 05:45:45 +0000

[…] story to tell, that we ALL need to hear. {And she was with me in the hotel room}. Stick around. Read her stories. She, her family, they have taught us to […]

By: Discovering Joy: Turning neuroses into new roses Pt 1

Discovering Joy: Turning neuroses into new roses Pt 1 — Mon, 11 Nov 2013 15:44:13 +0000

[…] you need to meet so and so! You two have so much in common!” Whether we are a military, special needs, empty nester, working, stay at home, or any other kind of mom, we need each other to discover the […]

By: 11: Why and Until | a Rearranged Life

11: Why and Until | a Rearranged Life — Sat, 12 Oct 2013 04:12:02 +0000

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By: Miriam

Miriam — Wed, 11 Sep 2013 12:43:01 +0000

Thanks April! I love hugs! Can’t wait to meet you!

By: Aprille

Aprille — Wed, 11 Sep 2013 11:37:06 +0000

I have no words. This breaks my heart so much. Wow. (hugs) to you.

By: Happy Birthday, Baby! | A Rearranged Life

Happy Birthday, Baby! | A Rearranged Life — Mon, 26 Aug 2013 15:51:59 +0000

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By: The day I waited for laughter | A Rearranged Life

The day I waited for laughter | A Rearranged Life — Thu, 22 Aug 2013 01:54:00 +0000

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By: Miriam

Miriam — Thu, 08 Aug 2013 19:09:00 +0000

Share away Barbara!! It was so wonderful to see you!! You are such a blessing to us!!!

By: Barbara Lee

Barbara Lee — Thu, 08 Aug 2013 19:07:49 +0000

Miriam, I have just finished reading your story. I already knew some of it but I am overwhelmed with emotions after hearing it from you. I want to copy it, if I can instruct the computer properly, and share with my prayer group who prayed for B when I was coming to see him.
I will also share with my daughter.
Blessings on you and the entire family.
Barbara

By: One Way to Take a Slice « A Rearranged Life

One Way to Take a Slice « A Rearranged Life — Wed, 16 Jan 2013 21:45:18 +0000

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By: Miriam

Miriam — Fri, 09 Nov 2012 16:17:33 +0000

I whole heartedly agree, Rob! I was very grateful to see that same article by Giles Manley on the Cerebral Palsy Family Network’s facebook page yesterday! Educating families, standard screening, widespread use of the nomogram, reporting of Kernicterus…all very important items on PICK’s agenda. We just had a great board meeting and are excited to see what we can accomplish in 2013! This HAS to end. PICK’s agenda is to #stopKI (KI – kernicterus).

By: Rob Jenner

Rob Jenner — Fri, 09 Nov 2012 16:05:50 +0000

Thank you for sharing your story. Unfortunately, it is a common one mothers have been increasingly facing. Jaundice affects some 60% of newborns. Although it is entirely treatable, it often is allowed to harm the baby. In some cases, brain damage can occur. We just wrote a blog about preventing and diagnosing jaundice early. My Advocates Jaundice Blog

By: Voice – # 1,000 « A Rearranged Life

Voice – # 1,000 « A Rearranged Life — Fri, 12 Oct 2012 15:18:29 +0000

[…] Few illusions of control left here! Living raw and giving thanks for innumerable blessings! Being Rearranged […]

By: colin

colin — Sat, 06 Oct 2012 09:07:30 +0000

Miriam, you write beautifully …and although i’m not a deeply religous, your chosen scriptured words really struck a cord. As a parent of a daughter with kernicterus, i connected with your trials, tribulations, heartache and pain. I remember the dark day’s of doctors informing us,”she’ll never walk and never be independent” … those same doctors fearing she wouldn’t reach the age of 24 months… Well we’ve recently celebrated her 24th birthday… she is very independent and ‘ambles’ around quite well. I look upon ”our story” as a triumph… and now, having read your words, i feel maybe it was a team triumph. with the team captain guiding us from above. Thank you so much for sharing …and God bless. Colin

By: Miriam

Miriam — Tue, 02 Oct 2012 18:25:41 +0000

Rachel! You got me right back! I cried reading your comment! :) it’s so powerful to see him at work connecting us all! …and using the mess that I am.
Hugs right back at ya!!!!

By: Rachel

Rachel — Tue, 02 Oct 2012 18:13:04 +0000

Miriam,

I’m so glad that you commented on my blog so that I could have the privilege of meeting such a wonderful woman–you are a faith warrior!

I wept as I read your story and ALL that you have been through, but to see the strength of your faith is a tremendous blessing and encouragement to me. I loved the Scripture you shared as well.

This was beautiful: “More and more, in the midst of trials, I discover the goodness of God. The lens widens. I see the sweetness of His provision and the tender love that He pours forth to His children, the ones that know they need Him” . You are a living testimony to this.

I’m blessed by your story and feel honored to read what you’ve shared from your heart so openly and honestly. Looking forward to keeping in touch with you in following along your blog.

Hugs to you,
Rachel

By: Fickle Magic « A Rearranged Life

Fickle Magic « A Rearranged Life — Thu, 02 Aug 2012 02:13:03 +0000

[…] Few illusions of control left here! Living raw and giving thanks for innumerable blessings! Being Rearranged […]